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FAQs: Grief and Bereavement

The following Frequently Asked Questions (FAQs) are common questions parents, family members, and caregivers ask after a SIDS death. We hope you find the answers here helpful. You can also visit the Statistics section of our web site for more information about SIDS rates of occurrence.

1. I feel so guilty and angry at the same time. Was anyone at fault?
2. Did our baby suffer?
3. Could the baby have vomited and choked?
4. Could the baby have suffocated in the blankets?
5. Is SIDS contagious? Could our older children get it?
6. Our baby had just gotten her DTP shot. Is SIDS caused by DTP?
7. My baby seemed so bruised. Could SIDS have been caused by child abuse?
8. Would it have helped if our baby had been breast-fed?
9. What about babies we might have in the future?
10. I know I need to get on with my life, but I can't seem to. What should I expect?
11. What do we tell our other children?
12. What effect will our baby's death have on our other children?
13. How will we deal with this a year from now?

1. I feel so guilty and angry at the same time. Was anyone at fault?
No one is to blame for SIDS. Almost all parents or caregivers feel in some way to blame for the baby's death until they begin to understand the facts about SIDS. Sometimes parents blame each other. Sometimes families blame the caregiver or the doctor who told them the baby was healthy.

It is important to know that:
  • No one can tell ahead of time whether or not a baby will die of SIDS.
  • No one can stop SIDS from happening.
Nothing you did caused the baby's death. Nothing you could have done would have prevented it.

2. Did our baby suffer?
SIDS happens very suddenly and all at once. The baby may move a little in the last few seconds. This accounts for the crumpled covers or unusual positions in which babies are sometimes found. Babies do not cry out and show no sign of having been disturbed in their sleep. They simply stop breathing and die very peacefully.

3. Could the baby have vomited and choked?
Vomiting or choking does not cause SIDS. Sometimes milk or a blood-tinged froth is found around the baby's mouth, nose, or on the bedding. This happened after the baby died. The autopsy shows that this fluid did not block the airway.

4. Could the baby have suffocated in the blankets?
Sometimes the baby is found wedged into a corner of the crib or with the blankets over his or her head. At times, the baby's face may be pressed down into the pillow or mattress; it may be discolored. It is natural to think that the baby smothered.

Researchers have found that babies can get plenty of oxygen even when covered by bedding. Even very young babies will move their heads to breathe. Suffocation does not cause SIDS.

5. Is SIDS contagious? Could our older children get it?
SIDS is not contagious. It cannot be spread from person to person. There is no need to be afraid of touching the clothing, bedding, or furniture of the baby who died of SIDS. SIDS only happens to babies. Older children do not die of SIDS.

6. Our baby had just gotten her DTP shot. Is SIDS caused by DTP?
SIDS is not caused by the DTP shot or any other immunization. This has been shown by several studies. SIDS happens in babies who have never had shots of any kind. SIDS happens at the same rate in countries where DTP is given at a later age or not at all.

7. My baby seemed so bruised. Could SIDS have been caused by child abuse?
SIDS is not caused by child abuse or neglect. Sometimes a SIDS death may not be discovered for a few hours. The changes that happen in the baby's body after the death may make it look like the baby was injured. But everyone-the police, paramedics, parents, and caregivers should realize that these changes after death are normal.

8. Would it have helped if our baby had been breast-fed?
Breast-feeding does not prevent SIDS. SIDS has happened all through recorded time, even when most babies were breast-fed. SIDS happens to both breast-fed and bottle-fed babies.

9. What about babies we might have in the future?
SIDS is not hereditary. Most future babies (over 99 out of 100) will not die of SIDS. You can learn more about it by talking to your doctor.

10. I know I need to get on with my life, but I can't seem to. What should I expect?
The loss of a baby is very traumatic. You can expect to experience many emotions over a period of time. After the shock and numbness of the first few days begin to wear off, you may feel very depressed. You may have trouble sleeping, feel dizzy or have headaches, have no appetite, and feel "tied in knots" inside. You may lean on family and friends for help, but may also have feelings of guilt and resentment that hinder that help.

At times your grief may seem unbearable and you may feel that you can't go on. Seeking help through a support group can begin the healing process. You can share your feelings with others who have experienced the same feelings at the loss of their baby to SIDS. In time you will be able to get back to functioning normally.

11. What do we tell our other children?
It is always better to be clear about the baby's death. Statements like: "The baby went away" or "The baby is sleeping in peace" only tend to worry and confuse children. It is important to explain that SIDS happens only to babies and not to older children or adults.

12. What effect will our baby's death have on our other children?
Smaller children may need more love and affection. They may have frightening thoughts that they cannot express: Did I cause the baby to die? Will I die too? Will Mommy and Daddy die? They may become "clingy" and do other things to get attention. It is very important for them to know that they are loved and secure.

Older brothers and sisters will go through their grief in different ways depending on their ages and past experiences. They may be very sad or may not show their feelings at all.

It's a good idea to be open in talking about thoughts and feelings. As you talk about it, your children will be better able to talk about how they feel.

13. How will we deal with this a year from now?
The first year after your baby's death will be the hardest, and your baby's first birthday and the anniversary of his or her death may be two very difficult times. Even if you seem better, the sadness and pain may return. Do something to remember your baby and to help ease your anxiety. While sadness will remain with you forever, the memories of your baby are some of the most important "keepsakes" you will have. You can treasure those memories and share them with others.
 

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